Getting the right information for PCOS diagnosis – Verity – The PCOS charity


What is this about?
Getting a diagnosis for PCOS is the first hurdle that many people face, and it is easy to feel overwhelmed, embarrassed and even frustrated when talking to your GP about your symptoms.

To help, Verity is making a document which will help people who might have PCOS put information about their symptoms, their concerns and their questions in one place, so they feel more prepared and confident to talk to their GP.

How will the project work?
We are collaborating with an amazing volunteer called Philippa on this project. Philippa will be hosting some focus groups to find out what people with PCOS and GPs think this document should cover to make it as useful as possible for both the patient and their healthcare provider. In addition to this critical feedback, we will also factor in existing evidence based resources such NICE, and the (soon to be published) International PCOS Guidelines and the AskPCOS mobile app.

How can I help?
We would like to talk to between 20 and 30 people with PCOS to find out what they think should be in the document, and how it should look. We are running four focus groups in total: two to share ideas then two to review the draft resource.

The initial focus groups will taken place on:
– Wednesday, 19th July from 18:30 – 20:00
– Saturday, 22nd July from 10:00 – 11:30

We really want this document to be as useful to as many different people as possible, including people who:
– come from minority cultural backgrounds
– are LGBTQ+
– have a disability/ learning difficulty and/or are neuro-divergent
– speak english as an additional or other language

Our volunteer Philippa running the focus groups has a lot of experience of working with people with additional needs.

How can I sign up?
If you would like to be part of a focus group, please drop your details into our sign-up form and we will be in touch in due course.


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